Medical information needed for an 18 month old with Zellwegers
Syndrome
Hi John,
I am calling upon the
Nesara readers to see if any of them may be able to help. I have been
asked to see if I can find anyone that may be able help regarding a 18 month
old child that has zellweger
syndrome. Even
though I know a lot from my years of studies ....this one is really stumping
me... This is almost always fatal...
Below is the
description from the boys aunt....
I talked with
some doctors who are familiar with naturopathic medicine, but when I tell them
about Omari’s condition [zellweger syndrome with partial seizures, infantile
spasms, hypotonic, and developmental delay. It is a peroxisome biogenesis
disorder affecting liver, renal and brain function], after reading upon the
illness, they e-mail me back and said they are unable to help me. I only
found one doctors who were familiar with zellweger syndrome and she treated a
young child, but the child only lived a year after.
What do you
think?
Blessings,
Shirley
Please contact Dale direct at dale.genesisbc@gmail.com
2 comments:
Check with Dr. Sherri Tenpenny at http://drtenpenny.com
I think you would be wise to contact the brothers in Colorado I believe who are growing a very special kind of marijuana that has been used with patients who have seizures - One little girl went from 300 a day to one. That is what I think Shirley. Valerie Kirkgaard
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